Authors:
Abstract
Investigate preferences of childhood cancer survivors (CCS) or of their caregivers (CG) about functionalities of a to be developed mobile app intended to improve compliance with a personalized survivorship care plan (Survivorship Passport) delivered according to the PanCareFollowUp model.
A 19-item Likert-type questionnaire was distributed by Childhood Cancer International among its affiliated associations. App functionalities were grouped into four modules (My Passport; My Hospital; Communication/Telehealth; My Health) and assigned to one of the Quality of cancer Survivorship Care Framework (QCSCF) domains.
A decreasing score was given to each answer with “very useful” having the score of 4 and “not useful” the score of 1. Response data were reported with their mean (μ) score and values >3.5, between 3.2 – 3.5, 2.6 – 3.1 and <3.1 were defined as “very appreciated” “appreciated”, “fairly appreciated” and “not appreciated”, respectively.
One hundred and fifty-four subjects (55% CG) completed the survey. Six functionalities were very appreciated and belonged either to the My Passport (n=3), My Hospital (n=2) or Communication/Telehealth (n=1) modules. Nine functionalities were appreciated (Communication/Telehealth n=6, My Passport n=3). Functionalities of the My Health module were the least appreciated. When functionalities were pooled according to the QCSCF, those pertinent to the health care delivery contextual domain were very appreciated, while those related to cancer and its treatment were not appreciated.
This survey provided useful information which contributed to the development of the Cancer Survio Smart Card prototype by the SmartCARE consortium.